One of my wonderful commentors, Mama Kat said... What exactly IS PDD-NOS? Well I am still learning myself. I found this wonderful blog to help explain it "Understanding Autism"
I can't say that I totally get it yet. For me it's just another diagnosis which means they really don't know what exactly is wrong and this is a best guess again. There is an interesting online test you can do for your child to see if they meet the PDD-NOS criteria, you can find it here .
It's all confusing and frustrating, I have this little innocent grandchild who was exposed to a multitude of drugs inutero, it took the hospital 59 days of PICU to detox all of it out of his system. I don't know if them not allowing him to be held during this process of detox caused it or if it's due to all the drugs he was exposed to while inutero or if it's because it's just how God created him.
Somedays I have a ton of anger towards his parent's, my son and Timmy's birth mom, some days I am just so sad for all of them. Timmy is getting to the age where he is asking more and more about why his parents aren't around and why he doesn't live with his sister and it's getting harder and harder to satisfy him with the easy answers like "Your parents couldn't take care of you and they knew I could so since they love you they had you live with me". Now when I say that standard line to him he says "why couldn't they take care of me? am I bad? don't the love me? why can't I live with my sister when my friends all live with their sisters?
Ok this is too serious today and I need to end it with something else.
Last night I picked Timmy up from his second day of after school care. He tells me "Mom, I met a girl and she is so HOT", so me being me says to him"Timmy, it's not appropriate to call a little girl Hot, you can say she is beautiful or cute" Timmy responds to me with "Mom, how come my penis grows when I like a girl" OMG, he is 7 years old, I almost wrecked the car from this one. So I avoided a direct answer and will defer to one of his uncles for this answer!! Any suggestions on the penis growing answer will be greatly appreciated!!
Thursday, December 18, 2008
Wednesday, December 17, 2008
Wednesday - Another work week 1/2 gone
Well we made it to Wednesday. I have to say I am really concerned about how Timmy is going to do at the new daycare today. He gets out of school early and will be there at 1:15. I have the "therapist" lined up to go and spend 1-1/2 hours with him there to help with the transition. The daycare folks have been wonderful well with the exception of the "nurse". This woman is a real PITA and feels the need to interfere with everything I set up with the daycare owners. The funniest thing was watching her when the owners were around. She turned into this other person who was sweet and kind vs the one who was giving me the inquisition and telling me how I should be doing everything. Anyway I just need to let it go and realize some people are on a power trip and in reality she has no power over me or Timmy or our situation, she is just a speed bump we can drive right over.
Tonight we have the BA coming over. I am hopeful he can get Timmy to start sleeping in his own room. I really feel like I have no time for unwinding. My house is still a wreck although I did manage to place an order for groceries online and had them delivered last night. This morning I even managed to put something in the crock pot for dinner. Let's hope the 10 hour cook time doesn't ruin it! I need one of those crock pots with a delayed start! I leave home at 6:45 am and done get home until around 5:45 pm, oops that's an 11 hour cook time. Maybe my sweet sister can go by the house and turn it off for me around 4pm. Note to self: Call sister!
Ok so I got almost all of my todo's done from Monday but I still have a ton of things left and even more to do now, here we go,,,,,
1. Start wrapping presents - I have to do this but with Timmy attached to me when we are home it's not easy
2. Clean my house - I hate clutter everywhere, I come home and feel anxious because it's a mess and yet I don't have the energy to get the cleaning done, why is that?
3. Call my sister - I really don't want to forget this one, my dinner will be awful after 11 hours in the crock pot.
4. Do Laundry - Timmy gained 15 lbs while on this new medication(I am titrating him off it now) and all of his school uniform pants are really tight. I bought 12H and then 14H and they are still tight. This is a 7 year old child! Hopefully getting this medication out of his system will help! Ok I can go on and on about this subject. He gets home and will do nothing but eat one thing after another. It seems this medication the doctor in the hospital put him on causes the stomach to block the histamines and he never feels full!. I can't wait to get him off this stuff.
5. Schedule a physical for him since the new daycare needs a physical form filled out and the last physical he had was in the hospital. They will not fill out the form for me. I have 2 weeks to get it done but since it's the holidays well who knows when it will happen.
6. Wrap presents, yes again because I don't even know what I bought and if I have to go shopping again well time is about out.
Today my brain is mush with all of this and I can't even think of what I need to do,,,,,, help me!!
Timmy with his sister Emily making pizza, Emily lives in Connecticut with their maternal Aunt and Uncle. We will save that for another day
Tonight we have the BA coming over. I am hopeful he can get Timmy to start sleeping in his own room. I really feel like I have no time for unwinding. My house is still a wreck although I did manage to place an order for groceries online and had them delivered last night. This morning I even managed to put something in the crock pot for dinner. Let's hope the 10 hour cook time doesn't ruin it! I need one of those crock pots with a delayed start! I leave home at 6:45 am and done get home until around 5:45 pm, oops that's an 11 hour cook time. Maybe my sweet sister can go by the house and turn it off for me around 4pm. Note to self: Call sister!
Ok so I got almost all of my todo's done from Monday but I still have a ton of things left and even more to do now, here we go,,,,,
1. Start wrapping presents - I have to do this but with Timmy attached to me when we are home it's not easy
2. Clean my house - I hate clutter everywhere, I come home and feel anxious because it's a mess and yet I don't have the energy to get the cleaning done, why is that?
3. Call my sister - I really don't want to forget this one, my dinner will be awful after 11 hours in the crock pot.
4. Do Laundry - Timmy gained 15 lbs while on this new medication(I am titrating him off it now) and all of his school uniform pants are really tight. I bought 12H and then 14H and they are still tight. This is a 7 year old child! Hopefully getting this medication out of his system will help! Ok I can go on and on about this subject. He gets home and will do nothing but eat one thing after another. It seems this medication the doctor in the hospital put him on causes the stomach to block the histamines and he never feels full!. I can't wait to get him off this stuff.
5. Schedule a physical for him since the new daycare needs a physical form filled out and the last physical he had was in the hospital. They will not fill out the form for me. I have 2 weeks to get it done but since it's the holidays well who knows when it will happen.
6. Wrap presents, yes again because I don't even know what I bought and if I have to go shopping again well time is about out.
Today my brain is mush with all of this and I can't even think of what I need to do,,,,,, help me!!
Timmy with his sister Emily making pizza, Emily lives in Connecticut with their maternal Aunt and Uncle. We will save that for another day
Monday, December 15, 2008
It's Monday and I need space and sleep
Wow, it's Monday and I somehow made it through another week. I am soooooo freaking tired. My sweet little boy has decided to wake up at 2:30 am every day since Thursday night and about every 15 minutes tells me he wants something else. He wants TV. He wants food, he has to ask me a question, etc etc. It's bad enough he won't sleep in his own room but even the chaise next to my bed is too close! I can't brush my teeth without him watching let alone go to the bathroom without him banging on the door at least 10 times or even walking right in (yes I know lock the door). I am so whooped right now. I notice the less sleep I get the harder he is for me to deal calmly with. So no sleep for me means lots of yelling and frustration for both of us. So it's Monday morning, I am at work and I have a zillion things to do and all I really want to do is sleep!
Ok the list of things to do:
1. Get milk - there has been no milk in the house for 3 days
2. Get Gas - no choice here cuz I will run out of it soon
3. Wrap Presents - well that would be great if I had 5 minutes without him to even start it
4. Get groceries - running out of fridge food and lunch snacks and juice now, ordered online at Peadpod last night but no delivery until Tuesday night
5. Get the forms to the bus company for afterschool drop off
6. Get the forms to the new daycare and pay them
7. Take Timmy for another physical at his new pediatrician for daycare
8. Call "The Therapist" and "the BA" and "the CMO worker" to be at the daycare as much as possible to shadow him when he starts so that I am setting him up to succeed
9. Pray that he doesn't cuss anyone out at the new daycare because he is overwhelmed
10. Call the bus company and find out what day they will start transporting him
11. Start the DDD paperwork
12. Start the SS paperwork again
13. Go to the drugstore and get his new medication since his old one put 15 lbs on him in 6 weeks.
14. Clean my house (It's a mess)
15. Do the laundry
16. Take a shower and get my hair washed, dried and flat ironed.
17. Work all day at work so I keep my job
I know there is more but I am too tired think of them all.
Oh btw the "therapist" was gentler this time and Timmy responded much better to him. Hopefully he will help Timmy and remember he is 7 years old and not the 10-15 year old child he is used to working with.
Ok the list of things to do:
1. Get milk - there has been no milk in the house for 3 days
2. Get Gas - no choice here cuz I will run out of it soon
3. Wrap Presents - well that would be great if I had 5 minutes without him to even start it
4. Get groceries - running out of fridge food and lunch snacks and juice now, ordered online at Peadpod last night but no delivery until Tuesday night
5. Get the forms to the bus company for afterschool drop off
6. Get the forms to the new daycare and pay them
7. Take Timmy for another physical at his new pediatrician for daycare
8. Call "The Therapist" and "the BA" and "the CMO worker" to be at the daycare as much as possible to shadow him when he starts so that I am setting him up to succeed
9. Pray that he doesn't cuss anyone out at the new daycare because he is overwhelmed
10. Call the bus company and find out what day they will start transporting him
11. Start the DDD paperwork
12. Start the SS paperwork again
13. Go to the drugstore and get his new medication since his old one put 15 lbs on him in 6 weeks.
14. Clean my house (It's a mess)
15. Do the laundry
16. Take a shower and get my hair washed, dried and flat ironed.
17. Work all day at work so I keep my job
I know there is more but I am too tired think of them all
Oh btw the "therapist" was gentler this time and Timmy responded much better to him. Hopefully he will help Timmy and remember he is 7 years old and not the 10-15 year old child he is used to working with.
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