These days I don't know what to believe or where Timmy's PDD came from but I do know that I will keep looking for answers to help him and keep hoping some day he will recover. I read this and thought it was important to share.
David Kirby on The Huffington Post
I have always said there may be a small percentage of people with autism spectrum disorder (perhaps those with Asperger Syndrome) whose symptoms are a result only of their genetic makeup, with no environmental factors involved at all.
But a new study out of UC Davis' MIND Institute says that it's time to abandon science's long, expensive, and not very fruitful quest to find the gene or genes that cause autism alone, without any environmental triggers.
"We need to keep (environmental) studies going," Irva Hertz-Picciotto, the co-author of the study and professor of environmental and occupational health and epidemiology at UC Davis, said in a statement.
"We're looking at the possible effects of metals, pesticides and infectious agents on neurodevelopment," Hertz-Picciotto said. "If we're going to stop the rise in autism in California, we need to keep these studies going and expand them to the extent possible."
Autism is predominantly an environmentally acquired disease, the study seems to conclude. Its meteoric rise, at least in California, cannot possibly be attributed to that shopworn mantra we still hear everyday, incredibly, from far too many public health officials: It's due to better diagnosing and counting.
The autism epidemic is real, and it is not caused by genes alone: You cannot have a genetic epidemic. It really is time that we, as a society, accept that cold, hard truth.
"It's time to start looking for the environmental culprits responsible for the remarkable increase in the rate of autism in California," Dr. Hertz-Piccotto said.
The study results suggest that "research should shift from genetics, to the host of chemicals and infectious microbes in the environment that are likely at the root of changes in the neurodevelopment of California's children," the statement added.
The UC Davis Study, funded in part by the National Institute of Environmental Health Sciences (NIEHS) found that the rate of autism among six-year-olds in California mushroomed from less than 9 per 10,000 among the 1990 birth cohort, to more than 44 per 10,000 for kids born in 2000.
This increase, "cannot be explained by either changes in how the condition is diagnosed or counted," the statement said, "and the trend shows no sign of abating."
(It is important to keep in mind that almost every child born in 2000 would have received many vaccines that contained the mercury preservative thimerosal, which was not completely phased out of most - but not all - childhood vaccines until at least 2003.)
Of the 600-to-700 percent increase in autism reported in California between 1990 and 2000, fewer than 10 percent were due to the inclusion of milder cases, the study found, while only 24 percent could be attributed to earlier age at diagnosis.
There was only one logical conclusion: some thing or things in the environment had to be at play here.
I have always said that all environmental factors should be considered in at least some subgroups of autism. This position has been met with considerable ridicule. I believe that opponents are afraid that, if we start looking at toxins like heavy metals, it might one day lead back to thimerosal. Likewise, if we consider live virus triggers, we may have to take another look at the measles-mumps-rubella vaccine (which thousands of parents swear was the trigger than sent their children tumbling into autism).
Now, it's always been easier and more reassuring to tell ourselves that autism was almost purely genetic, that it was always with us at the rate of 1 in 90 men (1 in 60 in New Jersey) and that, gee, weren't doctors doing a great job these days of recognizing and diagnosis this disorder.
This pathetic groupthink has helped create hugely lopsided funding priorities in autism, where genetic studies get lavishly funded, while environmental ones are lucky to even pick up the dollar scraps left behind
"Right now, about 10 to 20 times more research dollars are spent on studies of the genetic causes of autism than on environmental ones," Hertz-Picciotto said. "We need to even out the funding."
I agree.
Yes, we must continue to look for the susceptibility genes that make some kids more vulnerable to environmental triggers - possibly through a diminished capacity to detoxify themselves.
But the sooner our best minds in science and medicine come to grips with the fact that these poor, hapless kids have been exposed to the wrong environmental toxins and/or infectious agents at the wrong time, the sooner we can find out how to best treat what really ails them.
It is illogical for us to oppose the study of, say, mercury exposures and autism, because it might somehow implicate thimerosal, and by extension, vaccines.
After all, heavy metal studies into autism could very well incriminate background environmental sources, but exonerate metal sources found in vaccines, such as mercury and aluminum.
And that would be a good thing for everyone.
What the heck does "NOT OTHERWISE SPECIFIED" mean anyway?
Wednesday, January 21, 2009
Monday, January 19, 2009
Happy MLK Day!
I have been lagging on the blogging. I think it's the after Holidays thing or maybe it's the lack of services for Timmy and no time to do anything for me. So I thought I would write a quick update on what's happening or better yet barely happening...
1. New Therapist has been introduced, she came Saturday for 1-1/2, seems nice but can't see us again until next Sunday
2. New BA came last Saturday(9 days ago) and made it back today to help with Timmy since I am working. She was suppose to come Saturday afternoon but didn't show or call. Showed up today an hour late, my sister was ready to kill me (not really) but I feel awful since she did me a huge favor taking him for the morning and she has a life and things to do for herself, so I am so sorry Deb!
3. I have no clue when we will get respite Saturday again, they keep cancelling which means I am not getting anything done because when I am home my needy shadow is with me.
4. I am working on doing the CF diet for Timmy, it's harder than it seems but I will keep starting over till we get it right! GF is on the horizon
5. I called a D.A.N. practitioner in the area and found out how expensive it is to even see them, I have no clue where I am going to come up with that money
6. I need my hair dyed really bad but when I cave in and do it from home it always looks horrible!
7. We got to spend a day with Timmy's sister Emily which was wonderful and we miss her all the time and wish we lived closer to her.
8. Timmy lost his 2 front teeth but the tooth fairy is not coming until he sleeps in his own room, he sleeps in my room on a lounger but he is rapidly outgrowing it. Let's see if he moves to the floor or his room (right next to mine)when he starts falling off this thing.
9. IEP was postponed until next Monday and the school I really want him to go to does not have a classroom available for his age group.
10. I would love to do a "service" thing today but I am just barely making it providing for Timmy so that sucks!
Ok, that kind of is a quick synopsis of the last few weeks, keep us in your happy thoughts...
1. New Therapist has been introduced, she came Saturday for 1-1/2, seems nice but can't see us again until next Sunday
2. New BA came last Saturday(9 days ago) and made it back today to help with Timmy since I am working. She was suppose to come Saturday afternoon but didn't show or call. Showed up today an hour late, my sister was ready to kill me (not really) but I feel awful since she did me a huge favor taking him for the morning and she has a life and things to do for herself, so I am so sorry Deb!
3. I have no clue when we will get respite Saturday again, they keep cancelling which means I am not getting anything done because when I am home my needy shadow is with me.
4. I am working on doing the CF diet for Timmy, it's harder than it seems but I will keep starting over till we get it right! GF is on the horizon
5. I called a D.A.N. practitioner in the area and found out how expensive it is to even see them, I have no clue where I am going to come up with that money
6. I need my hair dyed really bad but when I cave in and do it from home it always looks horrible!
7. We got to spend a day with Timmy's sister Emily which was wonderful and we miss her all the time and wish we lived closer to her.
8. Timmy lost his 2 front teeth but the tooth fairy is not coming until he sleeps in his own room, he sleeps in my room on a lounger but he is rapidly outgrowing it. Let's see if he moves to the floor or his room (right next to mine)when he starts falling off this thing.
9. IEP was postponed until next Monday and the school I really want him to go to does not have a classroom available for his age group.
10. I would love to do a "service" thing today but I am just barely making it providing for Timmy so that sucks!
Ok, that kind of is a quick synopsis of the last few weeks, keep us in your happy thoughts...
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