Saturday, February 14, 2009
Friday, February 13, 2009
Bedtime tonight is the night
For the past 2 years I have been unsuccessful getting Timmy to sleep in his own room. I have tried bribery, I have tried cajoling, I have tried threatening, you name it I have tried it. We have spent the last 3 weeks talking to the therapist about Timmy sleeping in his own room. Tonight is the night he has promised he will do it. He is currently parking himself on a lounge chair in my bedroom, he isn't in my bed but still I would like to have my own room at night and be able to read a book or just lay quietly and be alone.
So tonight when I pick him up we will again discuss what we have been talking about seriously for 3 weeks. Last night he tried to get me to move it to Saturday night and I refused. I am sure it's going to be a tough night for both of us but there is a new Pokemon movie on at his bedtime tonight so I am hoping that helps. I am not giving in and it's may get a bit ugly but he needs to do this and I need some space.
So all my friendly bloggers say a prayer for us tonight, we need all the help we can get. Oh and BTW we still have no BA.....
So tonight when I pick him up we will again discuss what we have been talking about seriously for 3 weeks. Last night he tried to get me to move it to Saturday night and I refused. I am sure it's going to be a tough night for both of us but there is a new Pokemon movie on at his bedtime tonight so I am hoping that helps. I am not giving in and it's may get a bit ugly but he needs to do this and I need some space.
So all my friendly bloggers say a prayer for us tonight, we need all the help we can get. Oh and BTW we still have no BA.....
Wednesday, February 11, 2009
Happy Wednesday,, well not happy but Wednesday
Update: So I get a call from the new BA who barely speaks english, at this point I am so frustrated that I have called my CMO worker and requested she pre-screen this person before I have them enter our home and lives because I am so cynical with the process I may not be fair. More to come,,,,
So here's the good news, my sister's blog was feature on SITS today, way to go Sistah!
For me the saga continues to get a Behavioral Assistant for Timmy. Per the course we had a phone call and emails last week with the promise of a new BA. Well on Thursday at 9 pm after another 3 weeks without a BA this new person calls me. I find out he lives over 2 hours away and once he hears where we live he is not able to work with us. So back to square 0 again! On Friday after numerous calls to the CMO they tell me they will search for another BA for us. Monday nothing, Tuesday a.m. I get an email saying the following "Although we have not been able to find a BA for you yet because we are looking for one and anticipating finding one very soon we will not authorize any additional Therapist hours" GRRRRRRRRRRRRRRRRRRRRR. Well those that know me know that that email just infuriates me so I start calling and emailing. Then I get an email about an hour later stating they found a new agency and the referral has been sent, I will be getting a call in the afternoon from this new BA. So tick tock tick tock, not very patient Marcie is waiting for the call and guess what, surprise of all surprises, it doesn't come. Nothing, Nada, Nyet.
This morning I pick up the phone and call the office of the director of my local CMO, of course I can only speak with her Admin Assistant who assures me she will look into it. After 30 minutes, I get another email from the CMO, this time stating that they are sorry but the agency never got the referral but it's being resent and they have assigned a BA. So me being me writes back, well that's nice and I hope someone will make sure this person knows how to be a BA and is reviewing their credentials to make sure this one doesn't call my child a Brat and has actually worked with a child on the Autism Spectrum before. I am now at the point where I am not going to have people who don't know what they are doing come in and out of our lives and cause chaos. I have some expectations here and I am not willing to sacrifice my expectations for an hour break because guess what, the wrong person again could be the one who sends Timmy over the edge.
Well wish me luck, I will continue to make phone calls and raise havoc with these people today in between trying to make a living! Oh and by the way, I signed Timmy up for Summer Camp, I still don't have the funds for it in place but hopefully I will find a way to make it happen, not just for him but for me too!
So here's the good news, my sister's blog was feature on SITS today, way to go Sistah!
For me the saga continues to get a Behavioral Assistant for Timmy. Per the course we had a phone call and emails last week with the promise of a new BA. Well on Thursday at 9 pm after another 3 weeks without a BA this new person calls me. I find out he lives over 2 hours away and once he hears where we live he is not able to work with us. So back to square 0 again! On Friday after numerous calls to the CMO they tell me they will search for another BA for us. Monday nothing, Tuesday a.m. I get an email saying the following "Although we have not been able to find a BA for you yet because we are looking for one and anticipating finding one very soon we will not authorize any additional Therapist hours" GRRRRRRRRRRRRRRRRRRRRR. Well those that know me know that that email just infuriates me so I start calling and emailing. Then I get an email about an hour later stating they found a new agency and the referral has been sent, I will be getting a call in the afternoon from this new BA. So tick tock tick tock, not very patient Marcie is waiting for the call and guess what, surprise of all surprises, it doesn't come. Nothing, Nada, Nyet.
This morning I pick up the phone and call the office of the director of my local CMO, of course I can only speak with her Admin Assistant who assures me she will look into it. After 30 minutes, I get another email from the CMO, this time stating that they are sorry but the agency never got the referral but it's being resent and they have assigned a BA. So me being me writes back, well that's nice and I hope someone will make sure this person knows how to be a BA and is reviewing their credentials to make sure this one doesn't call my child a Brat and has actually worked with a child on the Autism Spectrum before. I am now at the point where I am not going to have people who don't know what they are doing come in and out of our lives and cause chaos. I have some expectations here and I am not willing to sacrifice my expectations for an hour break because guess what, the wrong person again could be the one who sends Timmy over the edge.
Well wish me luck, I will continue to make phone calls and raise havoc with these people today in between trying to make a living! Oh and by the way, I signed Timmy up for Summer Camp, I still don't have the funds for it in place but hopefully I will find a way to make it happen, not just for him but for me too!
Sunday, February 8, 2009
Finding the money for Summer Camp
I found a wonderful 7 week overnight summer camp program that would welcome Timmy. They offer ABA, education and socialization, these are all the things that Timmy needs. Now I just have to figure out how to come up with 8,000 by the end of April. It's so hard to do everything financially for him alone. His medications and doctors not to mention hospital co-pays, homeopathic doctors, special diet are all catching up with me now. I make a decent living but with his needs it's a paycheck to paycheck experience now. I have burned up the savings I had just to get him where we are now. There are some options, we could move to a smaller less expensive place but moving for him is traumatic and it would cost me 5,000 or more just to move us. I am going to see if I can get the school board to help pay for this since Timmy is suppose to be in year round school. If I could just get 1/2 of the money from another source I would live on PB&J for the next 6 months to come up with the other half. Anyone have any brilliant ideas?
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