I hung up on the school district child study team person who is assigned to us. We have a new person this year who doesn't have a clue about Autism or Timmy. We have been going back and forth for months, everything I say to her she tells me "I have to check with my supervisor". I have repeatedly asked her for this supervisor's name and she won't give it to me. Today I got so frustrated with her, she tried to tell me that Timmy needs socialization and that the program the district is willing to pay for will give him that.
The program is 4 hours per day for 5 weeks, 3 days are spent going on field trips to various locations, 2 days are spent having cookouts, water fights, etc. If we are lucky he gets 30 minutes a day of education. He is then brought to his daycare after this "school" day and when he arrives all of the older children are off on field trips and he is stuck in a 4 yr old room during nap time. Talk about setting him up for failure! He hates nap time, he needs to be with children his age and he will miss all the bonding and fun they will have all their field trips all summer. How is this better for him than an overnight camp with 1-2 hours of one on one tutoring daily and then being with the rest of the campers? I have found a camp which specializes in "communication and social disorders", basically, PDD-NOS, Autism and ADHD and will send him there for the summer.
How can this woman who has spent a total of maybe an hour with my child tell me what is best for him? This woman has now told me to write another letter to the director of Special Services in my district again. No matter that this person hasn't responded to any other letter sent to her. No matter that my child is transported on a bus with teenagers who have slapped him, picked on him, stolen from him and taught him cuss words and all kinds of other special things no 7 year old should even know about. I guess now I have to send this next letter to this director who ignores me certified and registered and maybe this time she will pay attention. Some how I seriously doubt it.
So I did it, I said to her "I am done speaking with you today" and I hung up before I called her the young inexperienced incompetent person I would have if I stayed on the phone, let me tell you it was coming...
Ok so maybe I was a bit stressed, I am getting nailed for ambulance transports to hospitals this past year for Timmy. The ER's insisted on transporting him to the inpatient hospital but failed to put on the bill it was an emergency transport and didn't get authorization from insurance to transport him. Had I failed to allow them to transport Timmy they would have put a 7 day hold on him and done it anyway. It's just all so frustrating and it's such a roller coaster, Help I don't want to be on this ride anymore,,,,,,,,,,,,,,
2 comments:
It is very frustrating and stressful.
The summer camp sounds good.
It can get so frustrating when you are constantly "fighting" for your child/children! I know the feeling all too well! My thoughts and prayers are with you. I have even gone so far as to contact the head of the district school board to discuss one school in particular I had a LOT of problems with. Maybe you've done that already, but I think it may be them I would send the certified letter to after a phone call. Also, if the head of the district school board doesn't help or get involved, I would then write my congressman an email. If that didn't work, I'd start getting media involved. That is just my opinion. I know it sounds like a lot of work, but "fighting" is what we do best. We are our children's only advocates.
My prayers and thoughts are with you!
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